Lucky

I am lucky and fortunate. So many people that have Chiari suffer, while my feet tingle. I do have other symptoms, but I do not suffer from any debilitating symptoms. I do have chest pains from time to time and heart palpitations that has caused me to worry about my heart, but thank God, everytime I have it checked out I am fine. I am still in Israel. I planned on being here for 3 months, it has been 6, and I am working on a Hip Hop documentary. I have done alot searching while I am here, and although I am not sure why I have this condition and the other conditions I have XLH, these are the cards I have been delt, and I am fortunate. I have began to wrap Tefillin. These are prayers from the Torah placed in boxes and attached to straps, which Jews are commanded to wrap around their arm and on their head daily. It also hits all of the chinese acupuncture spots, including the back of the head, places right over the site of the chiari.
If you are Jewish male with Chiari, or actually if you a Jewish male period, wrap tefillin. You may not realize it at first, but it is body army.

Also, I have just read this article.
http://www.dailymail.co.uk/news/article-1293996/JLS-songwriters-wife-died-agonising-headaches-blamed-pregnancy.html?ITO=1490
This woman had Chiari, and died 3 days after her surgery of heart failure. Why?
Does any one have any more information about this.

You are all in my thoughts. My parents are at the Chiari seminar in Texas this week.

2009

I am going to Israel on wednesday for a few months.

Chiari is weird. I have random aches and pains in my body, some pain in the back of my head. But I would'nt call it a headache.

Big shout out to Christine, for adding a link to this blog on her Chiari site. Lots of good information over there, go and check it out.

Heres a link,

http://christineschiariblog.blogspot.com/

Cool Chiari Stories

Lately,

There have been a few chairi- football related stories in the news. I enjoyed reading these articles, not just because they deal with chiari, but because they are about young men with the condition. Now I never played football myself, not because I have Chiari, but because I suck at sports, but I always wanted to play football or hockey and I'm glad I didn't, although I have smacked my head a few times snowboarding, prior to wearing a helmet and prior to my knowledge of Chiari.(Actually I have not snowboarded since my diagnosis, although I was given the thumbs up by a specialist.)
The first article is a bout Jon Dierkes, a slim kid who loves football, and after being smacked in the head with a few to many concussions he found out that he Chiarian. This guy has balls, he still decided to play football his senior year of high school, except he changed his position to kicker. The article says that he goes to weight training. Hold up, I wonder what kind weight lifting he is doing. It would be cool to find that out.

The second article speaks of a Casey. a kid who is no longer playing football because his Chiari diagnosis, after several concussions. The article makes it seem as though his Chiari is a result of his concussions. This is not the case though. You are born with Chiari right? You don't develop it. Chime in if I am wrong. The concussions could have really rocked his brain, but they are not the cause of his Chiari.
Either way, they are both inspiring articles

Here are they are

http://www.bnd.com/homepage/story/1063571.html
http://www.thebostonchannel.com/asseenon5/21963004/detail.html

SWIMMING TIME!!!!!!!

I have few Chairi Symptoms and I want to excersize, not just because excersize is important, but because I want to look good, I am 24 years old and I want to look fit. This is where i a met with my first barrier. I have 10 and 15 mm herniation, very little pain no head aches no syrinx, been recommended by Chiairi specialist to hold off on surgery until neccessary, I DONT KNOW HOW MUCH I CAN LIFT, I will start with swimming, and push ups and sit ups and would like to do pull ups, but i am not sure if i can do that. I hope I will not bring on any pain or irritate things, this is my only concern.

I have Chiari, WTF?

This blog is really not for older people with an Arnold Chiari Malformation. This blog will be for young adults with Chiari and parents dealing with kids that have Chiari, that want to participate in sport activities, maybe lifts some weights. I have just been diagnosed with Chiari within the month. This is directly related to my XLH. X-linked hypophosphemia( think I spelled that right. I am turning 24 in september. My head bothers me constantly. The thing is, I am very little pain, so I am quite stubborn about the entire situation. I have read alot of blogs and websites and I am still in the beginning of my Chiari Journey. I would like to know if their are people with Chiari that surf and snowboard, (ok so I'll wear a helmet), or play contact sports.

Also, I am only seeing top doctors that deal directly with Chiari. I have read about the horrible surgeries and mistakes that have been made. I do not know if I am having surgery yet, but I am pretty blocked up there and eventually something must be done, but for now I would like to live my and life.