This blog is really not for older people with an Arnold Chiari Malformation. This blog will be for young adults with Chiari and parents dealing with kids that have Chiari, that want to participate in sport activities, maybe lifts some weights. I have just been diagnosed with Chiari within the month. This is directly related to my XLH. X-linked hypophosphemia( think I spelled that right. I am turning 24 in september. My head bothers me constantly. The thing is, I am very little pain, so I am quite stubborn about the entire situation. I have read alot of blogs and websites and I am still in the beginning of my Chiari Journey. I would like to know if their are people with Chiari that surf and snowboard, (ok so I'll wear a helmet), or play contact sports.
Also, I am only seeing top doctors that deal directly with Chiari. I have read about the horrible surgeries and mistakes that have been made. I do not know if I am having surgery yet, but I am pretty blocked up there and eventually something must be done, but for now I would like to live my and life.
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I am 24 years old. I have just been diagnosed with ACM, Arnold Chiairi Malformation. Many people endure extreme pain and headaches due to this condition. ASAP.org is great site for information about Chiari and Syringomyelia. I do not have a syrinx or Hydrocephalus. This blog will discussy mainly Chiairi in men, and issues men may encounter with this condition. Can I snowboard? Can I Excersize? Should I get the surgery?
